marți, 1 decembrie 2015

Started this...



I decided to translate my blog. Why? Simply because we are so many...all over the world...And simply because I feel that if my blog will motivate one person, knowing my story will make a difference for one person, then it is enough for me.

In fact, I started this 4 years ago, in Romanian. Things changed since then, but I will not try to "make it look prettier" . I will just translate trying to keep my own words, that I wrote back then..

Mar 8, 2013
I decided to create this blog. I am not a blogger, I was neither ever attracted to read any blog, just occasionally. Because the Internet is full of videos, articles etc, about " Lyme disease" and "MS - Multiple Sclerosis", all highlighting the same thing: bacteria, lesions, chronic disease, depression, paralysis etc, I, as a carrier of these diseases (whatever it is, probably both), I had enough reading the same things. My doctors from Germany counseled me to search Internet web pages that would show that I am not the only one in this situation. I really wanted to find something new, that would motivate me to keep going, to give some hope that everything will be ok, to pull me out of depression...I couldn't find any.Maybe I am not the best "web-researcher", the point is that in the end I found my inside motivation, and it seems to be working, for a while (I just hope that it won't be just a fugitive episode, but this "episode" was the most difficult phase of this illness and I see that I am still getting trough :) )





And maybe , among you, there are people that couldn't find (yet) the strength to self-motivate. As my doctors told me, in a not so happy situation, we are not alone in this and I think we can beat this :)
 I am 26 years old ( by now I am 29 going on 30 :) ) and since the age of 18 I had my first symptomatic. Back then, in 2005, I was diagnostic with Multiple Sclerosis. So, then I also started treatment with Interferon for MS. Autoimmune disease. Then sure, let's kill the immune system.
And this  is the way I lived until 2012 when , panicked of the symptoms that kept on worsening, I decided to look for an alternative treatment: bee venom, This, I heard it would do miracles for MS. It is the only substance that would cure the lesions.
This is how I met my doctor, immunologist and allergist . She was the first person that gave me just a  diet and some supplements , so I felt better.
The same doctor asked me to repeat Lyme test, because in Romania, at the point I was diagnosed, the only available test was ELISA, which in some cases can be a false negative . This was my case. When I repeated the test, I was sure that it will be a negative . "It is not possible, so many years, so many doctors, someone would have thought of that...", but I went because my lady doctor insisted, because she is too nice to deny her something :)

And surprise... Lyme tested positive. I think I cried few months for this. I thought Lyme would exclude MS. Normally this I would expect. What would be the chance to have both?
After 8 years I felt that I am not doomed to get paralyses , that I don't have an incurable disease, and I told myself that I am willing to get trough hell as I knew in the end I will be better. And what did a short trip to hell meant after 8 years of torture? I thought MS was over. And trough hell I've been. 


I am sorry I can't proceed now...but it's 2 AM and tomorrow I have ballet lessons :D. anyway, "started this" was longer then I expected. Discovered the blog :P